Friday, November 16, 2007

Sarcoidosis

If you have sarcoidosis your problem is with calcium. It is possible that a compound found in table salt, silica (also known as silicon dioxide), may increase sarcoidosis symptoms. Indeed, sarcoidosis share alot of symptoms with silicosis. Silica can also be inhaled from sandy soils, is added as a flowing agent in seasonings, can come from certain work gloves, from glass containers you eat and drink out of (glass is fused silica) or in some cases it is implanted (i.e. breast implants), and some foods are naturally very high in silica. If you're eating silica from a food source, it can be dissolved by boiling the food product in water for at least 10 minutes. If the silica is in supplements, find another supplement to better suit your purpose if you notice symptoms while taking it. It is said that silica 'transmutates' into calcium, which may explain the flare up of symptoms it has on some people with sarcoidosis. Many symptoms of sarcoidosis are due to high levels of the activated form of vitamin D, which increases absorption of calcium. Avoid all sources of vitamin D, including too much sunlight. Oatmeal and sweet potatoes have natural vitamin D, and some individuals may not be aware of this.

Sarcoidosis is found in higher amounts in the southeastern parts of the United States. If you live in an area with "limey water" and lots of sunlight, be on the lookout for symptoms increasing due to the high amount of calcium found in limestone. Your water supplier will know if your water is high in limestone. Note that lime (as calcium oxide from limestone) is purposefully added to some corn products (especially corn tortillas) to make the vitamin niacin available. Avoid stimulating your immune system unnecessarily by eating undercooked foods (especially red meat and eggs) and improperly washed raw foods contaminated with viruses and bacteria from the hands of others as they searched for which vegetable or fruit they wanted. If you do eat eggs, avoid getting that shell in it as it is mostly calcium carbonate. Don't crack eggshells in your eggs!

Many people with sarcoidosis share a common environmental problem with some people with Lupus and other autoimmune conditions: repeated exposure to pine trees can be a trigger. I met a lady in Florida (which has a tremendous amount of pine trees) who was first diagnosed with sarcoidosis, then a few years later was diagnosed with Lupus. She grew up living around lots of pine trees and because she lived in the country, they didn't have paved roads therefore poured white sand down to make roads. To top it all off, in addition to the pine trees growing naturally, she was surround by "pine farms", an agricultural business not alot of people are familiar with. I saw the sand used to pave the road and it is of the type that is very high in silica. Still today she lives around the sand and the pine trees (due to family), and still has autoimmune problems however she's a complete vegetarian now and claims many of her autoimmune symptoms don't bother her as much as long as she avoids meat and soy.

I met another lady who, as a child, was diagnosed with juvenile rheumatoid arthritis. She said she frequently ran through a pine forest when she was a child. As an adult, she moved out of the U.S. and started eating lots of vegetables and was taking dolomite and said many of her symptoms just went away. Of course, you have to be careful with those "rock supplements". Her doctors recently told her she has a sodium deficiency. One thing that's obvious, there is something about certain pine trees that's not good for those with autoimmune conditions.

Stress can make it really hard to recover from sarcoidosis. Some, but not all people will get a rash that appears on the top of their feet at the same time they have a flare up of their sarcoidosis. Keeping your levels of stress down is very helpful. A very large stressor many with autoimmune is not aware of is the act of riding in a vehicle, especially if you are the driver. The level of stress in the body increases dramatically due to the high amount of electromagnetic radiation found in a vehicle that is turned on. In fact, it may be the largest source of your stress in any given day if you live a relatively quiet lifestyle but still deal with autoimmune problems. The immune system gets turned on, and if you have an autoimmune condition, this will turn on your autoimmune problems. A couple of years ago, I purchased a device called a trifield meter and measured EMFs in vehicles while they were turned on. I measured extremely high amounts in the front part of the car , especially near the stearing wheel, and underneath and around the dash board. I also measured pretty high amount from old cordless telephones (it was higher than cell phones), and near anything plugged up such as the tv, stove, refrigerator, typewriter, computer monitors, breaker boxes were very high, and sidewalks that were paved right beneath power lines. Although this issue may sound unrelated to sarcoidosis, it is very related because it has a negative impact on autoimmune conditions.

Surprisingly, sarcoidosis has been cured in some people with the use of an acne antibiotic, minocycline, implying that in some with sarcoidosis, there may be an infection involved, or an infection may have been the trigger. Minocycline also calms the immune system so this may be a factor as well. This antibiotic has a particular affect on acid fast bacteria, of which mycobacteria are amongst. Note that mycobacteria are sensitive to a food component, citrate (citric acid) because it removes calcium. Individuals that had success with minocyclin may or may not have used the Marshall Protocol (to prevent Herxheimer reactions). For those of you who are shy about using drugs, you may find it interesting that sarcoidosis has also been cured in some individuals with melatonin alone after 2 yrs of treatment. Finally, I have spoken personally with the mom who's entire family (including herself) had sarcoidosis. She also had a friend affected who was was estatically cured after struggling for years from sarcoidosis by drinking Goji juice. He'd have to pay about $40 for every bottle, and drank a few ounces everyday for 6 months. In all of these "cured cases", sarcoidosis seems to have its most dramatic response somewhere between 6 months to 2 years. In other individuals who simply adhered to the philosophy of avoiding all known triggers, sarcoidosis simply "burned itself out". Of course, there is always the possibility of the disease returning if certain conditions are met.

23 Comments:

At December 4, 2007 at 12:06 PM , Blogger LoveaNurs2 said...

Good infor on Sarcoidosis. I have visited the Marshall Protocol website, and am going to start on the Minocycline. The other med which is suggested, Benicar;, I have having a hard time getting a Rx for this, since this comes from a study. My neurologist gave me the script for the minocycline, to try something new. I am tired for taking heavy steroids. I just tapered off 80mg of Prednisone....YUCK..never taking that stuff again. I will visit this blog again. Thanks

LoveaNurs2

 
At December 4, 2007 at 1:41 PM , Blogger RN said...

loveanurs2- in addition to minocycline, a study showed that melatonin (used in high doses)may treat chronic unresponsive cases. Additionally, someone used Golgi juice (do not know the brand but said is was ~$40/bottle, a few ounces daily) for 6 months cured his Sarcoidosis after suffering for years (personal communication with someone in a research lab). I wonder if, in part, it was due to the high vitamin A content of Golgi since Vitamin A inhibits Vitamin D - RN

 
At December 4, 2007 at 3:21 PM , Blogger LoveaNurs2 said...

RN, that Golgi Juice may have played a part in the "cure" if high in Vit. A. I know my Vit. D levels are elevated (D 1,25). I have excluded Vit D from of my diet as much as possible. Per the Marshall Protocol, Vit D inhibits the growth of the sarcoid granulomas. I stay of of the sun as much as possible as well. I will follow up on the Melatonin. I have not heard or researched that. All I know is the other meds I have been have not been successful, mere bandaids....sigh

 
At December 4, 2007 at 3:57 PM , Blogger RN said...

loveanurs2, I think it played a great part. Golgi also has all 8 essential sugars for the human body, something almost no other food has. By the way, UV light from certain fluorescent lamps will also trigger Vitamin D activation. I suspect in addition to vitamin D, manganese SOD plays a huge role in sarcoidosis. Finding manganese SOD instead of CuZn SOD in the granulomas of Sarc lungs is a very significant finding. This is an odd Vitamin D/ manganese association. Certain foods are very high in manganese, and certain cities (like Baltimore) have high amounts in the air, making it difficult for Sarcs to recover. I can tell you where to look to check your air.

 
At December 4, 2007 at 5:07 PM , Blogger LoveaNurs2 said...

RN..was wondering, do you have Sarcoidosis? I have Sarc on the frontal lobes of the brain, left optic nerve, all sinuses, left auditory ear canal and lungs.

 
At December 4, 2007 at 5:14 PM , Blogger RN said...

I should mention, although Vitamin A inhibits Vitamin D, isolated Vitamin A (as a synthetic supplement) to my knowlege, is not a standard treatment for Sarcoidosis, as its benefit/and or toxicity is not known for the condition. Given the variety of Vitamin A synthetic forms that exists (the form can make one toxic and another may be beneficial) I would not recommend anyone to start taking high doses of Vitamin A to treat the condition.

 
At December 4, 2007 at 5:29 PM , Blogger RN said...

loveanurs2- I do have an autoimmune condition, but it has not been diagnosed as Sarcoidosis. Mine is "of unknown etiology" that has affected various organs of my body (including my respiratory system). My autoimmune condition mimic several different autoimmune conditions, making it difficult to diagnose. For this reason, I begin looking at common denominators in the major autoimmune diseases, as well as certain things specific to clearly diagnosed conditions. I find out that doctors are not all on the same level when it comes to the correct diagnoses, and this complicates issue for patients. I also have a condition not yet recognized in the U.S. (but is in certain countries) on top of my autoimmune condition.

 
At December 4, 2007 at 5:33 PM , Blogger RN said...

I plan to post the information that I've gathered, in the very near future, on the other major autoimmune conditions, that are specific to those conditions, as well as common denominators amongst them all.

 
At December 4, 2007 at 5:59 PM , Blogger RN said...

loveanurs2 I have a question for you. How is your sleep? Do you sleep a normal uninterrupted 8 hours of sleep each night? I ask this because I think a significant amount of autoimmune activity occurs during sleep.

 
At December 4, 2007 at 6:00 PM , Blogger LoveaNurs2 said...

RN, have you visited the Marshall Protocol website? With your disease processes, it may be of some intrest to you. But by a previous comment you made, you may already be familiar with the site. There is ton upon tons of information on it regarding autoimmune diseases, besides Sarc. Apparently Dr. Marshall's protocol is effective for those diagnosis as well. It would be worth checking into if you have not already.

 
At December 4, 2007 at 6:19 PM , Blogger RN said...

loveanurs2, Yes I have visited the Marshall Protocol site. I think their input has made a large impact on Sarcoidosis. It is this type of specific information (minocycline) that people need to hear. Also, specific information such as avoiding eating potatoes and anything else that blocks the VDR, Benicar causing the disease to spread in some, and pregnisone being overall ineffective in this disease, is all good specific information.

 
At December 4, 2007 at 6:24 PM , Blogger RN said...

loveanurs2-Correction, I meant to say "Benicar stopping the spread of disease in some" in my last post.

 
At December 4, 2007 at 6:33 PM , Blogger RN said...

loveanurs2-Are familiar with the suggestion that sarcoidosis is caused by L-form (CWD, or cell wall deficient) bacteria. I came across a foreign research study that highly indicated that CWD are found in high amounts in both Lupus and Lyme Disease. If this is the case, (as it very well appears to be) this is a common denominator in the major autoimmune diseases.

 
At December 4, 2007 at 7:10 PM , Blogger LoveaNurs2 said...

RN, yes I am familiar with the CWD bacteria. The mycobacteria is stored in the granulomas which the WBC's are not able to kill, which causes the sarcoid tissue to grow and spread, due to our weakened immune systems. The Vitamin D hormone is manufactured in the granuloma, where the mycobacteria is waiting. The Vitamin D hormone keeps the granulomatous tissue healthy. Thats why we need to stay out of the sun and cut out products containing Vit D so it won't be produced in our bodies. The more Vit D is produced, the more the granulomas/bacteria will multiply and spread throughout organs through out the body. This is what I have learned, and makes so much sense to me. Thats why i am leaning towards the MP, and away from the traditional treatment of Steroids and the other "junk". I have been on Methotrexate, Plaquenil, and a slew of other stuff.....I am hoping my GP will write my a Rx for Benicar 40mg so I can begin the MP. The MD's are so leary to do this because it is a study and I have researched it offline...sigh

 
At December 4, 2007 at 7:15 PM , Blogger LoveaNurs2 said...

also...while researching the MP site, I also found out HOW i got Sarc. I have the disease Hypervitaminosis D. Its a genetic disorder i was born with, where my body maked too much Vitamin D. All these years I never knew. So already with the Hyper-D, and in the sun all the time as a child, then as an adult, and being a black female, it finally hit me in my 40's is when i was diagnosed. My vitamin D level is so elevated, when i had the labs drawn, per MP site. Just a little FYI. The MP site is really a good place for research and info

 
At December 5, 2007 at 5:55 AM , Blogger RN said...

loveanurs2-are you saying that you were dx'd with Hypervitaminosis D long before the Sarc diagnoses? By the way, I spent many hours in the sun too as a child, specifically between the ages of 6-12, much more than anyone could probably ever imagine, and far more than children do today.

 
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